| STUDY /RESEARCHERS | METHOD / PURPOSE | DATA SOURCE | DESCRIPTION |
|---|---|---|---|
| Congenital Rubella (Cochi SL, etc. (1)) |
Lincoln-Peterson Capture-recapture
method (Estimate completeness and adjust incidence) |
National Congenital Rubella Syndrome Registry; Birth Defects Monitoring Program. | The incidence of congenital rubella syndrome in the United States from 1970 to 1985 was estimated by applying the Lincoln-Peterson capture -recapture method. Two independent surveillance systems were used to monitor the incidence. |
| Cleft Lip / Cleft Palate (Chapman CJ, (2)) |
Multinomial capture-recapture (Estimate incidence) | Records from five hospitals. | The incidence of facial clefts among live births in the Auckland urban area from 1960 to 1976 was investigated. The method of capture-recapture was applied to correct for ascertainment and estimate the population incidence. |
| Spina Bifida (Hook EB, etc. (3)) |
Bernoulli Census and Log-linear Models (Estimate completeness and adjust prevalence) |
Birth certificates; Death certificates; Medical rehabilitation. |
The live birth prevalence of spina bifida in Upstate New York in 1969-1974 was estimated by using three independent data sources and the methods of Bernoulli census and log-linear models. |
| Down's syndrome (Huether CA, etc. (4)) |
Lincoln-Peterson capture-recapture (Estimate population size) |
Birth certificate; Chromosome analysis. |
The annual Down's syndrome birth in Ohio from 1970 to 1979 were estimated by combining two information sources and employing capture-recapture method. |
| Down Syndrome (Hook EB, et al.(5)) |
Log-linear model (Estimate prevalence) |
Dept. of Health records; Dept. of mental hygiene; Special schools; Hospital obstetric; Other hospital records. |
The prevalence of Down syndrome on children born January 1, 1955 through December 31, 1959, still alive on December 31, 1966 in Massachusetts was estimated by log-linear model and five different data sources. |
| Down Syndrome (Roecker GO, et al(6)) |
Capture-recapture (Estimate degree of completeness) |
Birth certificates; Chromosome analysis records. |
Two-sample capture-recapture method was used to estimate the completeness of reporting for Down Syndrome births during 1970-1980 in the state of Ohio. |
| Birth defects (Wittes J, et al ( 7)) |
Capture-recapture (Estimate size of population) |
Hospital obstetric record; Hospital inpatient records; Records from state Dept of public health; Records from state Dept. of mental health; Records from schools open to children with the anomaly. |
Five sources were used to estimate the number of all infants born with a specific congenital anomaly in Massachusetts during the years 1945 to 1949 and still alive on 31 December 1956. A generalized capture-recapture method was applied. |
| Fetal alcohol syndrome (Egeland GM, et al. (8)) |
Capture-recapture (Estimate prevalence) |
Indian Health service patient case file; Private physician records. |
Two-sample method was used to estimate the prevalence of fetal alcohol syndrome among Alaska Natives born during the period 1982-1989 (age 3-10 years as of December 1992). It is estimated that the prevalence is 3.8 per 1000 live births for children born 1982-1985, and 3.1 per 1000 live births for children born 1986-1989. |
| Fetal alcohol syndrome (Egeland GM, et al. (9)) |
Capture-recapture (Estimate prevalence) |
Indian Health Service patient case file; pediatric practice case file |
Capture-recapture methods were used to estimate the prevalence of fetal alcohol syndrome among Alaska Native born during the period 1982-1989. Based on the 2 sources, it was estimated a prevalence of the syndrome of 3.8 per 1,000 live births for children born 1982-1985 and 3.1 per 1,000 live births for children born 1986-1989. |
| Neural tube defects (Murphy M, et al. (10)) |
Capture-recapture (Estimate completeness of sources) |
Counts from office of Population Censuses and Surveys (OPCS); Initial local register |
Two-sample CR was used to compare OPCS counts of neural tube defects terminations/births notified from Oxfordshire/west Berkshire in England between 1991-4 with the cases known to the initial local register for that period to assess the relative completeness of each source. |