MARHGN STEERING COMMITTEE

June, 2001

This is the governing body of MARHGN and meets twice a year. Voting membership currently consists of one member from each state, appointed either by the health department or elected by a caucus of general members from that state. Other members include the chairs of all standing committees, officers, two consumer representatives, and one representative from the blood disorders group. The Chair of the Steering Committee is the President of MARHGN.

Executive Committee
MARHGN Office
State Coordinator
Delaware Representative
District of Columbia Representative
Maryland Representative
New Jersey Representative
Pennsylvania Representative
Virginia Representative
West Virginia Representative
Hemoglobinopathies Representative
Consumer Representatives
At Large Members
Committee Chairpersons

EXECUTIVE COMMITTEE:

President
Louis E. Bartoshesky, MD, MPH

A.I. DuPont Hospital for Children
1600 Rockland Road
Wilmington, Delaware 19899
(TEL) 302-651-5916
(FAX) 302-651-5033
E-mail: Lbartosh@nemours.org

Treasurer
Marion Schwartz, MSN

New Jersey State Department of Health and Senior Services
Newborn Biochemical Screening
50 East State Street
PO Box 364
Trenton, NJ 08625-0364
(TEL) 609-292-1582
(FAX) 609-292-3580
E-mail: Mhummel@mail.hsc.wvu.edu

Past President
Franklin Desposito, MD

Chairman's Office, Department of Pediatrics
UMDNJ: New Jersey Medical School
185 South Orange Avenue
Newark, NJ 07103-2714
(TEL) 973-972-5276
(FAX) 973-972-0178
E-mail: desposfr@umdnj.edu

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MARHGN OFFICE:

Curtis Coughlin II, MS, CGC

Coordinator
MARHGN c/o Christiana Care Health Services
Genetics Room 1988
4755 Ogletown-Stanton Road
PO Box 6001, Room 1988
Newark, Delaware 19718
(TEL) 302-733-6732
(FAX) 302-733-3074
E-mail: ccoughlin@christianacare.org

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STATE COORDINATOR:

Susan Panny, MD

Director, Office for Genetics and Children with Special Health Care Needs
Maryland Department of Health and Mental Hygiene
201 Preston Street, Room 319
Baltimore, MD 21201-2323
(TEL) 410-767-6730
(FAX) 410-333-5047
E-mail: pannys@dhmh.state.md.us

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DELAWARE REPRESENTATIVE:

JoAnn Baker, MSN, FNP

Director, Women's and Reproductive Health
Division of Public Health
PO Box 637
Dover, DE 19903
(TEL) 302-739-3111
(FAX) 302-739-6653
E-mail: jobaker@state.de.us

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DISTRICT OF COLUMBIA REPRESENTATIVE:

Jill F. Shuger, ScM

Oz Systems
3201 New Mexico Ave., NW, Suite 350
Washington, DC 20016
(TEL) 202-895-1366
(FAX) 202-274-1966
E-mail: Jshuger@oz-systems.com

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MARYLAND REPRESENTATIVE:

Sonya I. Ross, BS

Director, Program Development
Sickle Cell Disease Association of America, Inc.
PO Box 1956
Baltimore, MD 21203-1956
(TEL) 410-363-7711
(FAX) 410-363-4052
E-mail: siross@sicklecelldisease.org

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NEW JERSEY REPRESENTATIVE:

Beth A. Pletcher, MD

c/o Center for Human and Molecular Genetics
UMDNJ - New Jersey Medical School
90 Bergen Street - Suite 5400
Newark, NJ 07103
(TEL) 973-972-3300
(FAX) 973-972-3310
E-mail: pletchba@umdnj.edu

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PENNSYLVANIA REPRESENTATIVE:

Carol (Libby) Anderson, MD

St. Christopher's Hospital for Children
MCP Hahnemann, Department of Pediatrics
Front Street at Erie Avenue
Philadelphia, PA 19134-1095
(TEL) 215-427-8337
(FAX) 215-427-6693
E-mail: cea26@drexel.edu

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VIRGINIA REPRESENTATIVE:

None

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WEST VIRGINIA REPRESENTATIVE:

Sharon Wenger, PhD, FACMG

Department of Pathology
West Virginia University
Box 9203
Morgantown, WV 26506-9203
(TEL) 304-293-0446
(FAX) 304-293-3976
E-mail: swenger@hsc.wvu.edu

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HEMOGLOBINOPATHIES REPRESENTATIVE:

Frank Shafer, MD

Department of Hematology/Oncology
St. Christopher's Hospital for Children
Erie Avenue at Front Street
Philadelphia, PA 19134-1095
(TEL) 215-427-4399
(FAX) 215-427-6684
E-mail: sfrank.shafer@drexel.edu (or fs27@drexel.edu)

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CONSUMER REPRESENTATIVES:

Mary Ann Wilson

NF, Inc. - Mid-Atlantic
8855 Annapolis Road, #110
Lanham, MD 20706-2924
(TEL) 301-577-8984
(FAX) 301-577-0016
E-mail: nfmidatlantic@aol.com

Genetic Alliance (Tuesday & Friday)
4301 Connecticut Avenue, #404
Washington, DC 20008
(TEL) 202-966-5557, Ext. 206

Bruce Orr

502 West 36th Street
Wilmington, DE 19802
(TEL) 302-761-9347
(FAX) 302-762-7809
E-mail: Bruce07@aol.com

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AT LARGE MEMBERS:

Elizabeth Gettig, MS

University of Pittsburgh
Department of Human Genetics
130 DeSoto Street
Pittsburgh, PA 15261
(TEL) 412-624-7368
(FAX) 412-624-3020
E-mail: bgettig@helix.hgen.pitt.edu

Angela C. Obringer, PhD

Department of Ob/Gyn - MS 495
MCP Hahnemann School of Medicine
245 N. 15th Street
Philadelphia, PA 19102
(TEL) 215-762-8292
(FAX) 215-762-1470
E-mail: ao23@drexel.edu

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COMMITTEE CHAIRPERSONS:

BIRTH DEFECTS REGISTRY
Pamela C. Costa, MA

SCAEIS
PO Box 364
Trenton, NJ 08625
(TEL) 609-292-5676
(FAX) 609-292-3580
E-mail: pcosta@doh.state.nj.us

CONSUMERS

Mary Ann Wilson

NF, Inc. - Mid-Atlantic
8855 Annapolis Road, #110
Lanham, MD 20706-2924
(TEL) 301-577-8984
(FAX) 301-577-0016
E-mail: nfmidatlantic@aol.com

Genetic Alliance (Tuesday & Friday)
4301 Connecticut Avenue, #404
Washington, DC 20008
(TEL) 202-966-5557, Ext. 206

EDUCATION
Sandra Marchese-Beatty, MS, MBA, CGC

NeoGen Screening
P.O. Box 219
Bridgeville, PA 15017
(TEL) 412-220-2300, Ext. 12
(FAX) 412-220-0784
E-mail: smbeatty@neogenscreening.com

HEMOGLOBINOPATHIES
Frank E. Shafer, MD

Department of Hematology/Oncology
St. Christopher's Hospital for Children
Erie Avenue at Front Street
Philadelphia, PA 19134-1095
(TEL) 215-427-4399
(FAX) 215-427-6684
E-mail: sfrank.shafer@drexel.edu (or fs27@drexel.edu)

LABORATORY (Co-Chairs)
Elizabeth Prence, PhD

NeoGen Screening
P.O. Box 219
Bridgeville, PA 15017
(TEL) 412-220-2300, Ext. 28
(FAX) 412-220-0784
E-mail: eprence@neogenscreening.com

Sharon Wenger, PhD, FACMG

Department of Pathology
West Virginia University
Box 9203
Morgantown, WV 26506-9203
(TEL) 304-293-0446
(FAX) 304-293-3976
E-mail: swenger@hsc.wvu.edu

NEWBORN SCREENING
Marion Schwartz, MSN

New Jersey State Department of Health and Senior Services
Newborn Biochemical Screening
50 East State Street
P.O. Box 364
Trenton, NJ 08625-0364
(TEL) 609-292-1582
(FAX) 609-292-3580
E-mail: mschwartz@doh.state.nj.us

STATE COORDINATORS (Co-Chairs)
Arlethia Rogers

Genetic Nurse Consultant
Division of Women's & Infants' Health
Virginia Department of Health
PO Box 2448
1500 East Main Street, Room 135
Richmond, VA 23218-2448
(TEL) 804-371-4230
(FAX) 804-225-3307
E-mail: arogers@vdh.state.va.us

Jill F. Shuger, ScM

Oz Systems
3201 New Mexico Ave., NW, Suite 350
Washington, DC 20016
(TEL) 202-895-1366
(FAX) 202-274-1966
E-mail: Jshuger@oz-systems.com

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These pages created and maintained by Kara Levinson and Betsy Gettig

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Last updated: June 1, 2001