Welcome to the Lymphedema Family Study at the University of Pittsburgh! The goal of this project is to identify genes responsible for primary lymphedema. It is our hope that a new understanding of the genetic basis of inherited lymphedema will provide insight into its treatment and contribute to early identification of individuals at risk. Click on the links below for frequently asked questions about this condition, information about the inheritance of primary lymphedema, previous investigations into the genetic aspects of lymphedema, an update of our research, and listings of our references and other lymphedema websites.
If you and at least one other family member have primary lymphedema OR you are the only one with lymphedema in your family but your diagnosis has been established by a physician, and you would like more information on how to become involved in the Lymphedema Family Study, please contact the coordinator or this study, Kelly Knickelbein, M.S., at the address or phone number below:
